In May of 2019, panels from the AIDS Memorial Quilt hung in the National Center for Sexual Education in Havana, Cuba

Interview with author in Lilith Magazine

After Loss, a Devotion to Those Afflicted by AIDS

Not long after nurse and public health activist Elena Schwolsky’s husband, Clarence Fitch, died of AIDS in 1990, she left her job at a Newark, New Jersey, pediatric AIDS clinic, enrolled in graduate school, and went to Cuba to study the island’s AIDS treatment protocols and meet people living with the virus. The result of her six-month stay is the recently released Waking in Havana: A Memoir of AIDS and Healing in Cuba (She Writes Press). Both deeply personal and deeply political, the book is a reflection on the challenges of living with HIV/AIDS and what it means to deliver humane medical care. The impact of the US embargo on Cuba and the collapse of the Soviet Union are part of the story, but Schwolsky’s focus never wavers from the individuals who are working to eradicate the disease. Likewise, people living with the virus are front-and-center in her moving, and often surprising, account. Schwolsky sat down with Eleanor J. Bader in mid-December to discuss Waking in Havana, her ongoing AIDS work in Cuba, and the pervasive and persistent misconceptions about the island that continue to be promulgated.

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